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Tourette Syndrome - Now What? Guestbook 6

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TSNW - TSNowWhat - TouretteNowWhat - Tourette Syndrome Now What?

Name: Carole E-mail: Amboy666@aol.com
City: Manalapan Country: USA
Homepage: Date: 04-Dec-2005 19:29:05
Message:
Now that all of you are educating yourselves 
about Tourette Syndrome it is imperative that 
you educate the teachers your children come into 
contact with. Most teachers know little if 
anything about TS. I taught for 33 years, and 
only really learned about TS when my gandson was 
diagnosed. Now I make presentations to school 
faculties, and just about anyone who will listen!

Name: Pat E-mail: coolscraz@aol.com
City: Bayamon Country: Puerto Rico
Homepage: Date: 03-Dec-2005 23:06:09
Message:
My husband has Tourette's and through the years 
I've noticed that the ticks are increasing in 
severity.  He is very sensitive about the 
subject and wouldn't look for help or discuss 
the subject, but it's getting to the point that 
it's almost unbearable to be next to him.  I'm 
just looking for tools to help me deal with this 
and to hear from other people in the same 
situation.  Thanks for your website.

Name: Mimi E-mail: skolgar@yahoo.com
City: Atlanta Country: USA
Homepage: Date: 29-Nov-2005 22:53:24
Message:
I just want to thank you for the positive 
nature of your website and your warnings re: 
old literature. I am just now realizing this is 
why my husband licks his fingers and clears his 
throat repeatedly throughout the day. If its 
not hurting any one, should I even mention it 
to him? He was diagnosed with Adult ADHD about 
8 years ago and he is a bit OCD but neither 
impede in his work. He tends to have some 
grandiose thoughts though. Thats worrisome, but 
then again, sometimes he really reaches those 
goals so who is to say they are grandiose? 
Should I ask for a diagnosis or just be 
thankful for the information and move on. Its 
just a label right?

Name: KELLI E-mail: PMCLAUGHLIN5@STNY.RR.COM
City: ELMIRA Country: CHEMUNG
Homepage: Date: 29-Nov-2005 21:21:17
Message:
I HAVE A 12YR BOY WHO HAS TS. I DONT KNOW ANY 
ONE WHO HAS TS.IM TRYING TO FIND ANY INFO. I CAN

Name: Julian E-mail: trk20202005@yahoo.com
City: Country: USA
Homepage: Date: 29-Nov-2005 19:59:51
Message:
I am looking at this site with my Mom, I am a 9 
year old boy living with Tourette's. I really 
don't like my tics, and I am trying to get the 
courage to talk to my classmates about them, 
when they ask me why do you do "that"??

Thanks,
Jay

Name: Dee Fahey E-mail: deefahey@comcast.net
City: Country:
Homepage: Date: 20-Nov-2005 01:49:00
Message:
Thanks for all the great information.

Name: samantha mountifield E-mail: sammy69m@hotmail.com
City: portsmouth Country: england
Homepage: Date: 19-Nov-2005 09:17:38
Message:
hi all again.my twins where finally diagnosed 
with tourettes and adhd after 4 long years and 
have been described clonidine which helps with 
the tics but not the adhd.as they r now 10 and 
going through puberty it has got hard some new 
tics have appeared and the worser ones have 
gone,but they do have still alot of anger and 
anxiety.its hard havin to cope with tourettes 
myself and have now been pescribed a new 
haloperidol which i start on monday not sure 
wether it will work or wht side affects its 
going to have but will let you all know.but if 
anyone wonts to email me and have a chat about 
all the problem they go along with ts and 
having kids with ts feel free to contact me 
would be good to hear from people who suffer 
with this.goodluck everyone and be strong x

Name: Allison Smith E-mail: mikeandallie@comcast.net
City: Downingtown Country: USA
Homepage: none Date: 18-Nov-2005 19:16:26
Message:
My 7 year old son started having motor and 
vocal tics one month ago. He is also starting 
to have symptoms of ADHD. All his symptoms are 
increasing and I suspect TS even though it's 
only been a month.  This website has been very 
helpful to me.

Name: Lynn Cross E-mail:
City: Houston Country: USA
Homepage: Date: 18-Nov-2005 08:38:15
Message:
Great website!!!

Name: Dana E-mail: Babyboo200320042003@yahoo.com
City: Windham Country: Ohio
Homepage: none Date: 17-Nov-2005 13:02:54
Message:
i like you web site there is so much info on 
anything that people need to know have a great 
day

Name: researcher E-mail:
City: Country: USA
Homepage: www.geocities.com/nfpboard Date: 13-Nov-2005 13:16:47
Message:
Thank you for your informative site.

Name: Charles E-mail: inlongtime@yahoo.com
City: 28602 Country: USA!
Homepage: Date: 11-Nov-2005 21:15:14
Message:
I just saw on Paula Z this evening a story on 
TS. I am 39 years old and believe I may have 
been suffering from TS my whole life. I have 
never heard of TS until PZ. But believing is 
not a diagnosis. I want to talk to a 
professional who can accertain, from my 
symptoms, whether or not I am even close to 
what causes my tic. TS or ?

Name: Kimberley George E-mail: kim_george@rogers.com
City: London Country: Ontario
Homepage: Date: 05-Nov-2005 20:12:05
Message:
Great articles I am a volunteer at a public 
school and one of the children that I work with 
has TS so I was looking into TS when I cam 
across your web site.  Thank you for all your 
information and for giving a great 
understanding of TS

Name: Greg E-mail: anewday_1@yahoo.com
City: Fountain Inn Country: USA
Homepage: Date: 14-Oct-2005 12:27:42
Message:
I have noticed ticks in my son since age 4 but 
was diagnosed with TS until age 5. He just 
recently started a new school and is having a 
tough time adjusting and making new friends. 
His grades are slipping and there seems no end 
to his downward spiral. It's breaking my heart. 
Can someone offer any info or website on 
dealing with the person with TS and not simply 
the condition itself?

Name: anne-marie daoust E-mail: amd.hca@sympatica.ca
City: sturgeon falls Country: ontario
Homepage: Date: 03-Oct-2005 21:24:29
Message:
my daughter was recently diagnosed with TS adhd 
and ocd. She is now 9 years old.  Since she was 
4 1/2, we were told she was adhd, mutiple 
personalyties, bipolar, PDD autism and now TS. I 
was was wondering if their is a doctor that can 
tell me exactly what my child has. how do the 
sibling cop and how do parents cope with all the 
children involved.  How do you make people 
around you understand that she is ill and not 
badly raised. 

Name: Kathy E-mail: aussies4kat@yahoo.com
City: Prestonsburg Country: USA
Homepage: Date: 30-Sep-2005 09:04:55
Message:
My grandson Matthew was diagnosed yesterday with 
TS, accompanied with ADHD.  He is 6 years old 
and has had a terrible time at school.  How do 
we, as a family, help him.  We suspected ADHD, 
but not TS.  Please help us help him.  Any 
advice would be greatly appreciated.  I would 
like to find a chat room to share information 
with others.  If you know of a chat room that 
would be beneficial, please let me know.

Name: Tracey Bennetts E-mail: tracey_bennetts@hotmail.com
City: Ballaarat East Country: Australia
Homepage: Date: 26-Sep-2005 08:11:12
Message:
Thanks for the info is was very interesting to 
read. I am 44 years of age and was diagnosed 10 
years ago with TS and other disorders finding 
it very hard to cope at times, but reading 
articles such as this gives me something to 
contemplate Thanks again Tracey

Name: eric E-mail: surftolive2003@yahoo.com
City: carlsbad Country: u.s.
Homepage: Date: 24-Sep-2005 23:10:01
Message:
Thankyou so much for this web page of hope and 
understanding. My son is presently having one of 
his hardest times with t.s. It certainly is 
milder than alot I have read about,and in fact 
for about the last three months it has been 
almost nonexistent. It is diffently harder for 
me than for him. He is eight years old. I 
remembered reading this webpage when we first 
found out he had ts at five years old. I needed 
the balance you have to offer. God Bless you.  
eric.

Name: paul blackburn E-mail: pablackburn@cox.net
City: phoenix Country: usa
Homepage: Date: 24-Sep-2005 01:00:34
Message:
We have been aware of tourette's and the 
overlapping conditions of adhd, ocd for over 17 
years. For many reasons we are hoping for 
that "eureka" breakthrough which may not help 
us, but lead to easier lives for others. 

Name: Lauren Strait E-mail: wastrait1@yahoo.com
City: Horseheads Country: usa
Homepage: Date: 22-Sep-2005 19:28:24
Message:
hello every one my grandson is dx tourettes adhd
ocd odd im finding out there is a number of 
people that have it and that i am not alone what 
a relief it is to find others who went threw or 
is going threw the same thing

Name: Candace Earnest E-mail: candacefaith90@yahoo.com
City: Middleton Country: United States
Homepage: Date: 16-Sep-2005 13:52:01
Message:
I really loved your website. I myself have 
Tourettes Syndrome. I have known about it for 
the past 2 years and I am just now getting used 
to it. 
              Thank you,
               Candace Earnest, 14 Tennessee

Name: Carrie E-mail: radioflyer_cpj@earthlink.net
City: Newton Country: USA
Homepage: Date: 13-Sep-2005 22:45:47
Message:
Many, many thanks for this hopeful, helpful 
resource!  

Name: sally E-mail: sally_pkvsky@yahoo.com
City: johnstown Country: cambria
Homepage: Date: 12-Sep-2005 21:40:54
Message:
iam a single mom of a seven year boy who 
mighted have this problem but i need help too 
understand it more

Name: dee E-mail:
City: baytown Country: usa
Homepage: Date: 10-Sep-2005 18:08:59
Message:
i have it too.

Name: Karen E-mail: kdforr@yahoo.com
City: Tulsa Country: USA
Homepage: Date: 07-Sep-2005 20:18:13
Message:
I would like some help w/ a student who has 
TS.  I am at a loss w/ this student.

Name: Lisa E-mail: jrllml@lakefield.net
City: Manitowoc Country: USA
Homepage: Date: 03-Sep-2005 20:05:18
Message:
My 11 yr old son has just been diagnosed with 
TS.  One doctor medicated him and my son had a 
reaction to the medication. Thanks for this 
website, now I know not to medicate him and 
look for a doctor who knows TS. Your website 
has given my much information.  Thank you.

Name: Karri E-mail: karrimac53@yahoo.com
City: Round lake Heights Country: USA
Homepage: Date: 23-Aug-2005 12:48:12
Message:
Karri McLaughlin
Child/Adolescent psychiartic nurse.  Interested 
in alternatives.

Name: marnie E-mail: -
City: sydney Country:
Homepage: - Date: 23-Aug-2005 05:54:06
Message:
i think this is a really good web site that 
explains to people about TS  and it has also 
encouraged me as i have it and it makes me feel 
good that im not the only one that has it 

Name: Dawn Alenius E-mail: dawna@omegarealtors.com
City: roseville Country: USA
Homepage: Date: 10-Aug-2005 23:02:59
Message:
I grew up repeating myself and not really 
knowing why.  I'm glad that someone took the 
time to talk about their own experiences and 
knowledge of the subject.  This will be really 
helpful since I now have a son with the same 
symtoms.  He has some physical ticks but they 
aren't that serious and I hope he will outgrow 
them as many people, including me, do.

Thank You Sooooooo Much!

Name: Celeste E-mail: leste82@hotmail.com
City: Toowoomba Country: Australia
Homepage: Date: 10-Aug-2005 00:24:13
Message:
This was a great site, trust me, I have been 
through many to find the information that I have 
found in this one site... excellent

Name: kimberly E-mail:
City: sydney Country: australia
Homepage: Date: 09-Aug-2005 05:17:19
Message:
pandas and most other animals should be treated 
with recpeict just like everyone else!

Name: Laurie DeNicola E-mail: concord209@aol.com
City: Freehold Country: USA
Homepage: Date: 08-Aug-2005 23:53:01
Message:
My son has not been diagnosed with TS yet, but 
his tics have been comming and going since he 
was about 5 years old.  They disappear for long 
periods of time and then tend to reappear after 
an illness or stress.  His neurologist does not 
feel the tics are severe and does not want to 
perscribe meds (nor do I or my son want to take 
anything).  Recently he had a horrible reaction 
to pseudoeffedrine (Tylenol Cold Medication)  
since that time the tics have been visable and 
very uncomfortable for him.  He is 15 years old 
and he is very concerned about going back to 
school this way.  What can I do to help him?  

Name: Deb E-mail: precarms@mato.com
City: Sturgis Country: U.S.
Homepage: Thank you! Date: 03-Aug-2005 23:53:52
Message:
I have to say that after 4 years of being aware 
of my son's tourettes, this is the first 
positive feedback I've read.  I have gone 
through the same frightening feelings that many 
others have had.  I was devistated and 
unwilling to accept this at first, desperate to 
find a cure.  Thank goodness for this website!  
How comforting!  My question is this.  I 
haven't mentioned the word "tourettes" to my 
son or explained it.  I've been afraid he would 
feel labeled and I didn't want him to learn how 
terrible the prognosis was (until now).  I felt 
that if he heard that "this is what TS children 
do", he might develop those particular things.  
Should I tell him that this is what he has, 
and,if so, how should I go about this?"  Any 
advise would be welcome.  Thank you so much for 
this website!

Name: Miguel Cotter E-mail: cotteraguiar@msn.com
City: Lisbon Country: Portugal
Homepage: Date: 21-Jul-2005 05:54:35
Message:
I've just discovered my 5 year old son has TS. 
My first feeling was guilt. Now I'm really 
focused in helping him and helping me and my 
wife

Name: sandra E-mail:
City: stoke on trent Country: England
Homepage: Date: 26-Jun-2005 20:20:34
Message:
I have three teenagers with tourettes+ we have 
been through a lot but its other peoples 
awareness that causes me the biggest 
problems.thanks for this website

Name: Katy E-mail: ktmolly2000@yahoo.com
City: England Country:
Homepage: Date: 26-Jun-2005 15:09:34
Message:
Hi Ya 
I was just searching ts on yahoo and saw this 
site I have ts and am 22 years old female.Is 
there any other young women in england with ts 
around about my sge on here? xxxx

Name: WILLIAM E-mail:
City: Fort Mocleod Country: ALBERTA
Homepage: Date: 22-Jun-2005 17:10:53
Message:
I have tourettes for 8 years now I am 15 years 
old

Name: Vanessa E-mail: vanessagreen@shaw.ca
City: Kelowna Country: Canada
Homepage: Date: 11-Jun-2005 01:51:51
Message:
Thank you, I have just discovered that my 
intelligent, sensitive 9 year old son has 
tourettes and I am going through every emotion 
you discuss. I have read every website I can 
locate and finally one...yours...has given me 
some hope and a belief that this is not the end 
of all our dreams and wishes for him. Thank you 

Name: jenny E-mail: jenny5139@aol.com
City: indiana Country: usa
Homepage: Date: 01-Jun-2005 15:08:36
Message:
My 11 year old son was recently diagnosed with 
ts. his tics began when he was almost 4 years 
old when i took him to the dr. they said they 
wanted him tested for add- ??? so i never took 
him back, until a few months ago i demanded he 
see a specialist @ IUPUI and after spending 
about 3 minutes with michael she new exactly 
what i had been saying for7 years. it wasnt a 
surprise, just a Thank God!! Now he has been 
taking 1/2 a mg of Guanfacine (generic form of 
Tenex) for 2 months now and he is doing 
fabulous! he had pretty bad motor tics and some 
vocal, throat clearing and grunting. It is so 
wonderful to have my smiling, happy child back. 
now i would like to speak with other parents or 
introduce michael to children with ts so he can 
meet kids like him. any info would be great.

Name: girleeee E-mail:
City: Country: canada
Homepage: Date: 27-May-2005 12:11:19
Message:
im doning a research project on TS and this site 
helped alot, THANKS!!

Name: Stephanie Hughes E-mail: marcelhughes@adelphia.net
City: Newark Country: USA
Homepage: Date: 25-May-2005 02:39:51
Message:
My son has Tourette Syndrome, we have all 
different kinds of tics. A lot of phrase  
repeating.....

Name: TAMMY E-mail: tammybe@classicnet.net
City: Lydia Country: USA
Homepage: Date: 24-May-2005 23:21:19
Message:
My daughter has tourett's disorder.  I don't 
like the side effect of the Haloperidol that 
she is on.  could you please tell what else i 
could do for her.  She clears her throat all 
the time.  HELP

Name: Missie E-mail: hairdressermissi@netscape.net
City: Rockwood,Tn Country: USA
Homepage: Date: 11-May-2005 22:18:41
Message:
IM IN TN I HAVE A 15 YR.OLD SON THAT HAS 
ADHD,COULD HAVE OCD,HAS TWITCHES PRETTY BAD AT 
TIMES.HIS NICKNAME AT SCHOOL IS TWITCH...HE HAS 
STARTED LASHING OUT WITH HIS MOUTH AT TIMES HE 
NEVER USED TO DO THIS...HE REALLY  SEEMS TO BE 
GETTING WORSE I KNOW IT COULD BE THE AGE AT 
TIMES ,I WOULD REALLY LIKE TO FIND A GOOD 
NEUROLOGIST IN THE AREA,I DONT WONT HIM OVER 
MEDICATED.AT THIS TIME HE TAKES NO MEDICINE...IM 
ASKING FOR HELP PLEASE IF YOU CAN,IT HAS BEEN 
SOOOOOOOOOO HARD AT TIMES AND IS ONLY GETTING 
WORSE...THANK YOU MISSIE

Name: Robyn E-mail: RJL417@aol.com
City: Tyler Country: USA
Homepage: Date: 11-May-2005 15:31:13
Message:
My DD age 13 1/2 is ATTEMPTING TO COPE with as 
she calls it, her newly sentenced  "TS, OCD AND 
possible ADHD"... As a result I am attempting 
desperately to tread water and remain afloat 
between the outbursts. While she as at school I 
try to pick up the slack and research all I can.

Thanks for a great web site... we are destined 
to take our journey on a path I now know has 
been there a long time, but we have just payed 
the toll and gotten on that road... I need the 
stregth to reassure, remain calm, and tolerant, 
and guide her.

Name: Andrew John Capecci E-mail: spydetect3@aol.com
City: Charlotte Country: USA
Homepage: Date: 20-Apr-2005 15:09:37
Message:
I am diagnosed with T.S. and want to tell you 
how hard it is for me to have it. I want you to 
never tease or ask them about it. It really 
hurts my feelings. Here is how hard it is for 
me to control my blinking: TRY TO NOT BLINK FOR 
AT LEAST 2 MIN. THAT IS HOW HARD ITIS TO ME TO 
HOLD IT BACK FOR 5 SECONDS!!

Name: Alicia E-mail: alicianicole2005@hotmail.com
City: Woodlawn Country: USA
Homepage: n/a Date: 15-Apr-2005 11:21:21
Message:
i'm writing an english term paper on tourette 
syndrome: the diagnosis and living with it. i 
was just trying to find some information!

Name: TERRY E-mail: TCONGIONTI@AOL.COM
City: NEW ROCHELLE Country: USA
Homepage: Date: 06-Apr-2005 10:11:40
Message:
MY SON, 9 YEARS OLD HAS JUST STARTED HAVING SOME 
NECK TWITCHES, WHEN THIS STARTED, I THOUGHT BACK 
TO THIS PAST YEAR, WHEN HE HAS DISPLAYED OTHER 
MOTOR TICS (I THINK) EYE TWITCHES, MOUTH 
POPPING,ALL LASTED A SHORT TIME.  THIS TIME, IT 
SEEMS TO BE EFFECTING HIME MORE, IT ACTUALLY 
HURTS HIM.  WE HAVE AN APPOINTMENT IN A FEW 
DAYS, AND OF COURSE, MY THOUGHTS HAVE BEEN OF 
TOURRETTS, EVEN THOUGH THERE HAS BEEN NO VERBAL 
SIGNS.  HE IS A GREAT ATHLETE AND STUDENT, BUT I 
CAN ALREADY SEE A CHANGE IN HIS PERSONALITY.  
THE LAST FEW DAYS HAVE BEEN TOUGH, NEEDLESS TO 
SAY AND SLEEPLESS.   

Name: Jennifer Kling E-mail: aaronjaredryan@aol.com
City: Baton Rouge Country: USA
Homepage: Date: 30-Mar-2005 18:02:20
Message:
my son Aaron, was diagnosed two years ago.  I am 
looking online for more information and to see 
if there are any groups in my area for kids like 
him.  

Name: sandra E-mail: sandrahepper@wmconnect.com
City: No.Charleston,S.C. Country: u.s.a.
Homepage: Date: 26-Mar-2005 15:29:18
Message:
looking for parents of kids with t.s.in south 
carolina

Name: William Shryer E-mail: wshryer@behaviorquest.com
City: Danville Country: USA
Homepage: www.behaviorquest.com Date: 24-Mar-2005 10:56:23
Message:
While looking for information on PANDAS I came 
across your page.  We see so many patients that 
have found particular providors that encourage 
various treatment options that seem questionable 
at best.  Our practice has seen the IVIG 
approach, hyperbaric oxegen treatment, chelation 
and many others.  It's sad that so many are 
taken advantage of by fringe medicine, but so 
many are so desperate.

Name: Andrew E-mail: arholtum@cox.net
City: Phoenix Country:
Homepage: Date: 23-Mar-2005 17:51:42
Message:
I read your view that those of us who have TS 
and have done OK don't tend to advertise it.  I 
am 47 and have was officially diagnosed with TS 
about 20 years ago.  I seem to have gotten 
worse since childhood, but I've done fine.  I'm 
married with a 15 year old daughter.  I have a 
successful career in computers/engineering, I'm 
very active (running, cycling, x-country 
skiing, rock climbing).  I do still drive my 
wife crazy on occasion with tic fits ;-), but 
my low dose (Pimozide) medication has taken 
most of the edge off.  So there is life with 
TS! :-)

Name: Lisa E-mail: lrichard@rogers.com
City: Newmarket Country: Canada
Homepage: Date: 22-Mar-2005 22:16:54
Message:
Thanks for the sunshine.  I'm an basically 
optimist and I welcome the more sunny view of 
what's to come.  I've known in my heart for 
about a year now that my son has TS but only 
yesterday was confirmed by a new pediatrician.
Thanks again!

"Now what" is EXACTLY what has been going 
through my mind for the last two days.  

Name: joanne E-mail: joannepearceau@hotmail.com
City: brisbane Country: australiajust to say
Homepage: Date: 18-Mar-2005 10:06:30
Message:
just to say i like your site i care for a little 
girl with this condition

Name: anne E-mail:
City: glasgow Country: scotland
Homepage: Date: 16-Mar-2005 16:53:45
Message:
my 11yr old son has just been diagnosed with ts 
and i found your sit very helpful , thank you 

Name: Shirley E-mail: fincro@iinet.net.au
City: Perth Country: Australia
Homepage: Date: 11-Mar-2005 23:11:01
Message:
Hi 'Just a Mum'
Sincere thanks for your online article, I've 
book marked it, and, will check in regularly.
My dearest niece Sophie, has 'JUST' been 
diagnosed with TS. Sophie is now 20 yrs of age. 
She has been a 'squeaker' since age 7. Your 
article has helped us enormously, I've 
forwarded it my sister in London ( her Mum)
Once again, sincere thanks
Shirley  

Name: Kathy Coleman E-mail: cheergirl_65340@hotmail.com
City: Marshall Country: USA
Homepage: Date: 08-Mar-2005 10:14:46
Message:
I really enjoyed the site it helped me out a 
lot with what I am studying, I learned a lot 
and I thank you so much.  If someone would like 
to contact me my e-mail address is above I 
would greatly appreciate it.

Name: David Christopher Mi E-mail: rainmanhallelujah@hotmail.com
City: Denver, Colorado Country: USA
Homepage: http://freespace.virgin.net/david.mied/index.htm Date: 06-Mar-2005 16:43:56
Message:
I now have diabeties, that I blame on those 
HALOPERIDOL pills ??? Can someone now DO a song 
about me ???? So I can stop REAL SLIM???
Love: David C, Miedzianik
Say...med-gen-nick: Denver, Colorado, USA:
rainmanhallelujah@hotmail.com
PS: Instead of being like Fat Man, and The 
Diabetic Duo:
PPS: I'm now in Denver, Colorado, because my 
neighbour back in Old England, got me a letter 
sent out from Rotherham Council, telling me to 
turn my sterio down. At least I think it was my 
neighbour ??? And I was there, sitting in my 
house back there, with NOTHING ON. (No sound on):
PPPS: I hope my neighbours back there, can't 
hear my sterio, from the other side of the 
atlantic ???
PPPPS: I think the drug HALOPERIDOL deadens your 
hearing, to loud sounds, after you've been on 
them A LONG TIME ???
PPPPPS: I've now been off HALOPERIDOL about 2 
years, and I'm now REAL SLIM, like I've said: 
Before that I was on them about 36 years:
PPPPPPS: A doctor once told me, that he wanted 
me, to just try those HALOPERIDOL for 1 month.
PPPPPPPS: Each day of this month lasted over a 
year.
PPPPPPPPS: This month had very long days didn't 
it ???
PPPPPPPPPS: Once again, I HOPE, I can STOP OFF 
THESE FOR GOOD, now ???

Name: Jennifer Burchfield E-mail: Justajenn71@aol.com
City: Rock Island Country: USA
Homepage: Date: 28-Feb-2005 14:56:23
Message:
This site is awesome. I'm on my way to pick up 
my 9 year old son to take him to the psych 
now..he has OCD, Possibly Tourrettes (we are 
going to find out today) and seperation anxiety 
and Generalized anxiety. I ran accross this site 
on accident but you can bet I'll be back!!

Name: Candice Marple E-mail: LMa8560837@aol.com
City: Pasco, WA Country:
Homepage: Date: 26-Feb-2005 15:43:13
Message:
Thank you so much for all of the helpful 
information.  As a grandparent of a 5 year that 
has just been diagosined.  The information helps 
alot. - Regards - Candice

Name: Shaliah Rouse E-mail: shaliahrocks@yahoo.com
City: Philadelphia Country: United State of Amer
Homepage: Date: 22-Feb-2005 12:19:44
Message:
My heart goes out to the indivisuals
also I've so much about this disease.

Name: Meleana M. Hinchman E-mail: mmh46@cornell.edu
City: Victor Country: NY
Homepage: Date: 08-Feb-2005 20:50:08
Message:
I have a 21 year old brother with tourettes and 
he fights everyday to try and be " a good 
person " -poor guy tries so hard.  Theres just 
so many mean people out there that just thrive 
off of makeing this condition even harder to 
handle.  If you see someone with tourettes, 
please give them more love than just any old 
stranger, they need you.

Name: Karen Williams E-mail: kaz@dazdarts.freeserve.co.uk
City: wolverhampton Country: west midlands
Homepage: Date: 13-Jan-2005 16:34:37
Message:
Our 5 year old daughter has just started to 
increase her tics and I have found your web 
site very encouraging. thank you.

Name: Paula Forrest E-mail: paula@forrestsnug.wannadoo.co.uk
City: Norwich Country: Norfolk
Homepage: Date: 13-Jan-2005 16:12:50
Message:
We are waiting for a diagnosis for our daughter 
and I am still in the terrified and teary stage. 
I feel heartened by your website and encouraged 
reading about these remarkable children. My 
daughter appears to have these sociable 
selfaffacing, "its not an issue" qualities. she 
clearly is getting on with things - business as 
usual. Behind the scenes I am hopeless and 
distressed watching her little body throw itself 
about. Thank you for frank and positive 
communications. I will definitely visit this 
site again.   

Name: Rosemary E-mail: Rlaurahome@att.net
City: Country:
Homepage: Date: 11-Jan-2005 19:24:58
Message:
My daughter age 13 has a mild case of TS but 
she spits alot....its driving me crazy I need 
some coping skills

Name: Lili E-mail: lilimaginness@iprimus.com.au
City: Melbourne Country: Australia
Homepage: Date: 02-Jan-2005 09:26:51
Message:
Thank you so much for a great website on 
Tourette Syndrome.  I've read so much on TS 
looking for information as I am so sure (I know 
he has) that my son (6yrs old) has it and have 
cried & agonised over it for the last year.  My 
tears have started to lessen & the agony is not 
so bad after reading what you had to say.  From 
today onwards I am going to focus on my son 
instead of when the tics are going to stop & 
start up again.  Thank you for giving me hope & 
the strength not to give up on my darling son.

Name: Sandy E-mail: TweetyTaylor2000@aol.com
City: Hermosa, SD Country: USA
Homepage: Date: 29-Dec-2004 04:00:52
Message:
My son has had tourette's since he was 6 years
old and is now 11 yrs. old.  We have be though a
few medications and difficulties. Have found
Geodon and Clonazapam to be effective but if they
have what is called encoprisis, which is a bowel
problem then be careful because this medicine can
cause constipation. We have been see a local
neurologist but, we are nodw looking for a new
doctor some where in the area that specializes in
TS. If there is any one that knows of someone in
or around South Dakota would you please let me
know?  

Name: belinda E-mail: belindaj73@optusnet.com.au
City: townsville Country: australia
Homepage: Date: 18-Dec-2004 18:30:35
Message:
My 10yr old son has recently been diagnosed with 
Tourette Syndrome.  I am now looking for some 
help and answers for many questions

Name: Honey E-mail: RwlHnB@aol.com
City: Springfield, MO Country: USA
Homepage: TS Date: 21-Nov-2004 21:15:56
Message:
This web page has been helpful to me. 
Understanding what tourette syndrome is. I have 
a friend that has Tourette syndrome. I work with 
him. He is the sweetest person you could meet. 
Thanks again for the information.

Name: Peaches E-mail:
City: Georgia Country:
Homepage: Date: 21-Nov-2004 03:31:39
Message:
Sorry folks, but I agree with Dr. Laura. A 
wedding is all about the bride and groom.  If 
they are selfish, and insensitive enough to not 
want anyone there with concerns, issues, or 
problems, thats just fine, they just need to 
understand that that means, NO cards, gifts, 
invites and possibly very limited contact with 
the hurt, slighted, and offended family 
members. Personally, I wish my wedding 
reception could have been limited to guests 16 
years and up, as children cause distractions, 
and most of them are unruly. 

Name: Lora E-mail: ANLMARINO@comcast.net
City: Georgetown- DE Country: USA
Homepage: Date: 16-Nov-2004 12:54:23
Message:
My son was diagnoised with TS when he was 6. He 
shakes his head like his hair is in his face,he 
also blinks and opens his eyes wide at times. 
It does not bother him that he shakes his head, 
but I'm scared that when he gets older if the 
tics don't go away he will be teased. The site 
has helped us alot THANK-YOU.

Name: jenny E-mail: wardle_jen@hotmail.com
City: leicester Country: united kingdom
Homepage: http://tourettesyndromeleic.tripod.com/ Date: 02-Nov-2004 08:45:25
Message:
hi there well done on your home page 
if ya ever wanna talk then call me on 
07832149045 i have a 7yr old son with tourette 
syndrome and adhd and ocd so if ya ever wanna 
chat cal me 

Name: Ma. Cristina Abiera E-mail: baby_kei2000@yahoo.com
City: Manila Country: Philippines
Homepage: Date: 29-Oct-2004 11:47:28
Message:
Good day! Hi! I just wanna know where i can find 
the name of hospital that can surely cure the 
the Tourett Syndrome? And the website of it. Pls 
Help me. I've been looking for it for a long 
long time. Thank You.

Name: adele E-mail: adeleleech73@hotmail.com
City: cornwall Country: uk
Homepage: Date: 26-Oct-2004 10:58:06
Message:
hello my 8 year old may have ts or so his 
psychistrist thinks.  Im not sure he does move 
his face alot but I am not convinced he is 
ticcing. thanks for all the information.   How 
can chewing clothes be a tic, surely this is 
more likely a habbit?

Name: Jennifer E-mail: kidnie@highspeedfx.net
City: Arthur, Ontario Country: Canada
Homepage: Date: 20-Oct-2004 09:18:32
Message:
My 8 year old hasn't been diagnoised yet, but I 
know it is coming. My son has started clicking 
and bad tics to his head and neck.  It has 
being a time of sadness and worrysome.  I am 
looking for anyone else close by to help deal 
with some of our concerns.

Name: glaucely barbosa E-mail: glaucely@litoral.com.br
City: Santos Country: Brazil
Homepage: Date: 15-Oct-2004 17:57:15
Message:
Thanks for information. I`m phisiotherapist 
student , Medicin area and holistic therapeut.
Tnaks

Name: Lisa Stefaniak E-mail: Lcasey12@yahoo.com
City: Spencerport New York Country: USA
Homepage: Date: 13-Oct-2004 15:23:14
Message:
Thank you for this information.  I'm not as 
fearful as I was before I read your website. 

Name: Vicki Hill E-mail: capri1968@aol.com
City: Missouri City, TX Country: USA
Homepage: Date: 07-Oct-2004 15:34:18
Message:
My son is 10 y/o with ADHD on Concerta and 
Strattera & Clonidine.  History of vocal and 
motor tics for 4 years.  Recently diagnosed with 
TS.  I took him off Concerta b/c tics were 
getting very severe.  Still need help with 
paying attention in school, and still need help 
with tics.  Any suggestions?

Name: Nora Fisher E-mail: nfireball@cox-internet.com
City: Pineville Country: USA
Homepage: Date: 30-Sep-2004 00:40:51
Message:
Have had challenge with Tourette's for past 
year and a half.  I am 54 years young female 
with new onset.  Never had as child.  I see the 
positive side of all of this vs. the doom and 
gloom.  Thanks for this site.  

Name: jeannie E-mail: SCOTT69Z@JUNO.COM
City: WILDWOOD Country: USA
Homepage: Date: 27-Sep-2004 10:28:34
Message:
THANK YOU THANK YOU THANK YOU!!

Name: UCHE MUMU E-mail: MUMU4REAL@MAIL.COM
City: ONITSHA-TOWN Country: NAIJA
Homepage: Date: 25-Sep-2004 08:28:57
Message:
THANKS FOR YOUR WONDERFUL SITE KEEP IT 
UP...GUYMAN..MUGU.

Name: Adrienne Fechter E-mail: afechter@earthlink.net
City: Roswell Country: US
Homepage: Date: 21-Sep-2004 20:58:11
Message:
Our 7 year old son with Aspergers recently 
developed serious motor and vocal tics.  We are 
beside ourselves at this juncture, as the tics 
are definitely cauing him to stand out among 
his peers even though he is already is a 
special needs program at a private school.  It 
is so heartbreaking to watch and even more 
heartbreaking to hear that there is nothing we 
can do for him.  He does not yet have a 
Tourettes diagnosis, but I am sure it is coming 
once the tics persist. Isn't there anything we 
can do for him?  Isn't there a nationally 
renowned expert we can take him to?

Adrienne 
Atlanta

Name: Cheryl R. E-mail: cheryl0663@msn.com
City: omaha Country: usa
Homepage: Date: 17-Sep-2004 23:39:32
Message:
Although our son, age 7, has not been officially 
diagnosed with ts, I have no doubt this is the 
case.  The first symptoms appeared around age 
5.  This was eye blinking, then sniffing, then 
facial grimmaces, strange knee-knocking while 
walking, and most recently a rapid neck bending 
motion (face upwards to sky).  It seems worse 
when he is playing sports (which he loves and 
does very well in) and is trying to perform well 
in some way, such as taking a test.  My other 
concerns are behaviors such as anxiety and 
panicky behaviors including crying, stomach 
aches, headaches, etc. when going to school.  He 
also seems to be intolerant of others' 
behaviors, especially misbehavior of others, 
including his friends.  I am concerned that he 
will begin to be picked-on at school because of 
his tics and the fact that he is not very 
outgoing.  Although he is extremely bright, 
athletic, and very well-behaved in school, and 
his teachers say he gets along well with others, 
I can't help but feel there is just SOMETHING 
else going on with him.  I would really 
appreciate any advice, information on your 
experiences with similar children, or just 
anything you could tell me in figuring out what 
this sounds like to you.

Name: Jan Brown E-mail: jbrown98@san.rr.com
City: San Diego Country: USA
Homepage: Date: 15-Sep-2004 05:02:41
Message:
After searching for years, we finally got the 
diagnosis for TS and Tic Disorder.  Can I get 
feedback on the DBS if you or your loved one 
has gone through the operation?  My son suffers 
from Autism and GERD as well.  He has a 
horrible time with medications.  Thank you

Name: Jennifer E-mail: kabibbie98@hotmail.com
City: Bedford Country: USA
Homepage: Date: 03-Sep-2004 13:40:51
Message:
The doctor just informed me that I need to have 
my brother tested for TS and I'm trying to get 
any information about that I can.

Name: stephanie E-mail: johnstep@isu.edu
City: idaho falls Country: usa
Homepage: Date: 01-Sep-2004 12:27:42
Message:
Our son has TS and we are looking for other 
children who also have it.  It would be nice to 
know what to expect and know someone else who is 
the same.  It is not a highly known disorder 
here in Idaho.

Name: bebe E-mail: a_gost@hotmail.com
City: london Country: uk
Homepage: none Date: 31-Aug-2004 14:17:10
Message:
i've got ts and ocd so has my uncle and my two 
aunts 

Name: Julie E-mail: gr8t_life@hotmail.com
City: Atlanta Country: USA
Homepage: Date: 30-Aug-2004 10:06:28
Message:
Our son is being evaluated today and tourette's 
has been mentioned.  Our son at the age of two 
was diagnosed with one level above fetal alcohal 
syndrome.  *I was not his birth mother-  So I'm 
trying to understand this illness in case they 
feel this is one of his challenges.

Name: angela gibson E-mail: ponytail147456@yahoo.com
City: eminence in Country: usa
Homepage: none Date: 28-Aug-2004 10:14:44
Message:
i have just found out that my eight year old son 
has tourettes any information i can get would be 
helpful.

Name: Eric Daily E-mail: sassenach_1@hotmail.com
City: Alabama Country: USA
Homepage: http://groups.yahoo.com/group/CW_TS Date: 24-Aug-2004 03:12:19
Message:
CORRECTION: This is the correct address for my 
hompage!
http://groups.yahoo.com/group/CW_TS

Name: Eric Daily E-mail: sassenach_1@hotmail.com
City: Alabama Country: USA
Homepage: http://groups.yahoo.com/CW_TS Date: 24-Aug-2004 02:51:44
Message:
In the 2003 book entitled, " Getting Personal: 
Stories of life With Tourette Syndrome", I have 
an artical titled " Thank You Dateline ". My 
Name is Eric Daily. And I am the owner of 
Christians And Tourette Syndrome, a Yahoo Group. 
We are 4 years old, and 174 members as of today. 
Making it the largest active posting TS oriented 
group on Yahoo. It is a pleaseure to be a part 
of your community.

Name: Bob Jackson E-mail: bjackson@nella.net.au
City: Wodonga. Vic Country: Australia
Homepage: Jumping Jack Date: 30-Jul-2004 23:32:11
Message:
I would like to talk to people who suffer from 
Tourette Syndrome
I have been suffering with T.S. for 53 years I 
think I should be in the Guinness Book of 
recordsfor non stop hiccuping. 

Name: Jennifer E-mail: jenjenblank@hotmail.com
City: Grafton Country: USA
Homepage: Date: 29-Jul-2004 09:06:19
Message:
THank you,  My son is being diagnosed with 
pandas and mwe are thinking of ivig before 
school starts.  It has been a long 1 1/2 
years.  His anti dnase b titers are 2720 and n 
o one knows why.  Some of the Drs. believe 
pandas and some don't.      Thanks again for 
the info!

Name: Vivian E-mail: vkroner@meridianglobal.com
City: Novato Country: USA
Homepage: Date: 27-Jul-2004 11:24:02
Message:
Thank you.

Name: NICOLE E-mail: WWW.BLKPOODLE4@AOL.COM
City: WADING RIVER Country: USA
Homepage: Date: 20-Jul-2004 18:55:44
Message:
THANKS FOR THE INFO.  MY SON AT 81/2 HAD THE 
ONSET OF TS AFTER HIS FIRST STREP INFECTION.  
SINCE THEN HE DOES NOT GET SORE THROATS BUT TICS 
WHEN HE HAS STREP.  I HAVE BEEN THROUGH DOCTORS 
WHO DON'T HAVE FAITH IN ME IN THIS AREA.  WELL A 
NEW PED. I PICKED TWO WEEKS AGO WE WENT TO FOR A 
PHYSICAL.  TWO DAYS AFTER I CALLED HER B/C MY 
SON HAD A SWOLLEN LYMPH NODE IN HIS NECK, PAIN 
IN THE NECK, DEPRESSION AND A NEW FACIAL TIC.  I 
ASKED HER TO DO A STREP TEST AND SHE DIDN'T AND 
SAID HE WAS FINE.  THAT NIGHT HE STARTED TO 
VOMIT AND HAD SEVERE PAIN.  THE NEXT DAY HE WAS 
STILL VOMITTING AND HAD SEVERE STOMACH PAIN.  
SHE DID A STREP QUICK TEST WHICH WAS NEG.  I 
SAID DO A SEND OUT ONE.  WELL 21 DOCTOR CALLS, 6 
VISITS AND 3 ER VISITS AND A GASTRO DR VISIT SHE 
CALLED TODAY SAYING MOTHER KNOWS BEST HE HAS 
STREP.  tHIS IS SO FRUSTRATING B/C i KNOW PANDAS 
EXISTS AND MY SON HAS IT!!!!  I AM GLAD OTHERS 
FEEL THE SAME.

Name: deb E-mail: birdy@broadnet.com.au
City: Country: australia
Homepage: Date: 14-Jul-2004 12:14:08
Message:
hi;just want to say hellow

Name: Andrew Wright E-mail: andrew.bryngwyn@virgin.net
City: Holyhead Country: Uninted Kingdom
Homepage: Date: 09-Jul-2004 16:09:40
Message:
Is there anything that's been developed that 
needs trying and need's a guine pig to try it.
I'll do it.

Name: Julie E-mail: rockweird@aol.com
City: fayetteville, ar Country: usa
Homepage: Date: 29-Jun-2004 22:49:27
Message:
I've had lots of different tics since I was 5 
(I'm 21 now) and my family always ignored it or 
made fun of me...I thought I was a total freak 
and the only one who did those things. After 
reading some of the stuff on this site I'm 
pretty sure I have TS. It's nice to know there's 
a name for it and that I'm not the only one who 
has it :)

Name: Biddy Bishop E-mail: bid5552@yahoo.com
City: Huntington Station Country: USA
Homepage: Date: 12-Jun-2004 12:36:47
Message:
I was so happy to find your site and read your 
story.  I have 3 sons, 2 of whom have TS.  
They're fraternal twins.  One son 
was "diagnosed" last year, but I had 
unofficially diagnosed him many years ago.  I'm 
in the health care profession (rehabilitation, 
to be specific), so I have been exposed to many 
individuals with varying conditions.

My other son revealed some tics that he has but 
hides well, although I notice them at times.  
He, on his own, tells me that he knows he has TS 
but doesn't feel the need to go to a Neurologist 
at this point.  I respect his decision.

When I received my son's diagnosis, it didn't 
affect me in the least.  Both my sons (13 years 
of age) sound like yours.  Honors students, 
musicians, one into acting and singing,  
friends, social and, most importantly, 
kind/altruistic people.

I've realized some possible OCD traits.  No 
matter how hard he tries, my diagnosed son can't 
get out of the shower before 20 minutes.  My 
suspicion is that he has a ritual.  He washes 
his hands frequently (not noticable to others), 
but he also has never been sick or lost a day of 
school!  When I told my sons to stop bugging him 
about the shower since it may not be something 
he can control, his response was:  "I like 
having TS.  Now I can blame EVERYTHING on it!"  
We have to keep in mind not to let him get away 
with too much, since we don't want secondary 
gain to occur with this diagnosis!!

I'm also reflecting on my life and certain 
things are making so much sense for me, since I 
feel as though I'm an undiagnosed TS 
individual.  I've had many symptoms in past 
years,  very subtle, but I've known I had them.  
I blamed things totally on stress and anxiety, 
and now I have answers for them!!  I don't think 
it's an accident that I'm in the rehabilitation 
field.

My oldest son (16) has not exhibited any TS 
symptoms.

I realize the waxing and waning of TS, but I 
feel prepared for anything.  I love my children, 
we have a good, open relationship, and we'll be 
able to deal with whatever comes our way.  I'm 
not opposed to getting help if it's needed.  In 
fact, my oldest sons friend has TS, and I've 
spoken to his mother.

I've told parents of my son's closest friends, 
and there kids didn't even notice.  They just 
thought Matt's tics were just "Matthew."  How 
wonderful!!

Thanks for letting me share my story, and thanks 
for sharing yours.  What a wonderful site you've 
created!!

Name: Sara Tartavel E-mail: tartavel@sympatico.ca
City: Cambridge, On Country: Canada
Homepage: Date: 11-Jun-2004 08:53:38
Message:
I am thankful to hear from other parents who 
are going through tough times like myself and 
seem to be coping.  My son is 10 with Tourettes 
and I'm finding it is getting harder and harder 
to deal with this on a daily basis.  His fears 
and anxieties are making it hard on all of us.  
Any input would be appreciated.  Thanks

Name: Rafael E-mail: omega1ro@netzero.net
City: Cincinnati Country: USA
Homepage: Date: 09-Jun-2004 16:36:39
Message:
As a parent of a girl with some symptoms that 
may be TS I found the information in your site 
very enlightening. I can recall having some of 
the symptoms as a pre-adolescent... Anyway, 
thank you for what you have done here.

Name: renate E-mail: r.e.griffioen@student.tue.nl
City: eindhoven Country: the netherlands
Homepage: Date: 08-Jun-2004 04:55:36
Message:
Hello. 
I am a architecture student at the Technical 
University Eindhoven (the Netherlands) and I am 
working on an assignment about people diagnosed 
with the Tourette Syndrom. My assignment is 
about the acceptance of TS people (with a lot of 
tics) especially by their neighbours. How do 
neighbours react on the tics? Are people in 
America willing to learn more about TS? I hope 
you can help me on this subject and I would like 
to thank you in advance.

Greetings,

Renate Griffioen 

Name: Sheena E-mail: sfrigon11@hotmail.com
City: Edmonton, AB Country: Canada
Homepage: Date: 04-Jun-2004 12:29:55
Message:
I am a mother of a 9 year old boy that was 
diagnosed with TS and OCD at the age of 6. 
Theses disorders are very misunderstood in the 
general public.  At this time we are having a 
difficult time with his school and with some 
family members. The school has little 
information about these disorders thus very 
little understanding. At this time I am 
searching sites to aquire information for the 
people in my son's life.

Name: Jody E-mail: jodyjohnston30@yahoo.com
City: San Diego, CA Country: USA
Homepage: N/A Date: 28-May-2004 02:11:39
Message:
I stumbled across this site while looking for 
information on chronic motor tics.  I think I 
have undiagnosed OCD, possible slight TS.  I 
have many tics that drive me up a wall!  It 
gets worse in public because I try to not do 
them, which causes stress.  Many of them 
include the cracking of my knuckles, especially 
my thumbs which are very sore yet I can't 
stop.  I just added this site to my favorites 
so I can peruse it more often and join the 
message board.  I just wanted to give kudos to 
the web designer. Even though she has the 
disclaimer at the bottom of the page that says 
she is "just a mom" (cute) I think this web 
site is wonderfully informational and well put 
together.  I will hopefully get health 
insurance soon and be able to get some help 
with my obsessions and tics.  Thanks for the 
site! :)

Name: Mark E-mail:
City: Country: West Europe
Homepage: Date: 21-May-2004 19:42:21
Message:
Hey there, I'm glad websites like this are up 
to inform people about Tourette. I'm suffering 
with Tourette since my 6th, am 21 now, so I 
have quite a lot of experience under my belt. I 
learnt how to deal with Tourette, particulary 
as I got older. I gained more confidence and 
people in my environment learnt that acceptance 
is the best 'cure', or at least the best way to 
reduce it as much as possible. It's going 
really well 'cause my tics nearly vanished 
actually. :) I got an horrible peak when I was 
11, 12. Anyway, I'm a happy man now who just 
leads an ordinary life. For all the people 
who're going through tough phases, I'd say keep 
fighting, because there once will come a day 
that you'll realise you're nothing less than 
people who ain't suffering with tourette. Love 
ya all! <3   

Name: Jean E-mail: Worrynot1@aol.com
City: Country:
Homepage: Date: 20-May-2004 03:12:46
Message:
We just found out, after years of facials tics, 
that he has TS. We're confused, scared and don't 
know what the future holds for him/us. As he 
gets older will this effect his body? Thanks for 
listening :) 

Name: Nadia E-mail: pryadilova@hotmail.com
City: Cleveland Country: USA
Homepage: Date: 16-May-2004 00:46:12
Message:
Thank you for your support

Name: Claudia Doss E-mail: dossent@msn.com
City: San Antonio Country:
Homepage: Date: 14-May-2004 21:55:34
Message:
I love your website. Great information
I have a 10 year old grandson with Tourett's.

Name: jan E-mail: parker@unina.it
City: napoli Country: Italy
Homepage: Date: 06-May-2004 16:51:59
Message:
Thanks for sharing.

Name: sandra mackinnon E-mail: mackinnon_sandra@hotmail.com
City: kitchener Country:
Homepage: Date: 04-May-2004 18:44:31
Message:
very imformative site.

Name: Joel Dudley E-mail: joel@nanovoid.com
City: Chandler Country: United States
Homepage: Date: 29-Apr-2004 23:40:35
Message:
Excellent site. TS has quite a presence in our family. Good to 
see such a fair and balanced take on the issues involved.

Name: Shannon E-mail: autumnsunn@yahoo.com
City: Houston Country: USA
Homepage: Date: 29-Apr-2004 12:17:20
Message:
My 8 year old son was just diagnosed with TS. He 
is a staight A Honor Roll student with almost 
severe behavioral problems. I was actually 
relieved to know I was not the only mother 
dealing with these issues.

Name: MG E-mail:
City: Country: pa in the usa
Homepage: Date: 27-Apr-2004 12:38:44
Message:
i logged on your site after the disturbing news 
that a friends child was diagnosed with ts 
hoping to find some info to better understand 
what hes going through thank u for all the info 
u were very helpful

Name: Lone Espersen E-mail: loneespersen@get2net.dk
City: Odense Country: Denmark
Homepage: Date: 27-Apr-2004 03:57:11
Message:
Thank you for a very good and positiv homepage.
It was a relief to read your story. The story of 
my son i very much like yours.I also cried for a 
very long time,preparing myself for the worst.
Now I am much better.

Name: krista E-mail: kristahutson@hotmail.com
City: cambridge Country: canada
Homepage: Date: 25-Apr-2004 12:23:46
Message:
Hi. You're website has really improved my 
understanding on what I have been diagnosed 
with. Thank-you for your time in helping me 
understand this.

Name: Janis Oles E-mail: j.oles@charter.net
City: Worcester Country: USA
Homepage: Date: 16-Apr-2004 16:56:27
Message:
I came to this web site by way of doing research 
for a paper for a class.  I must add I am a 
senior learner and really didn't know why I 
choose Tourette syndrome when the instructor 
assigned a paper on any disease you wish to 
explore.  After doing research on TS I realized 
that there were children I went to elementary 
school, over fifty years ago, that probably had 
undiagnosed TS and I shutter to think how I 
teased them along with my fellow classmates.  
How ironic that in later life I became a medical 
social worker specializing in neurologic 
disorders.  Life has a way of teaching us the 
lessons we need to learn.  Keep up you vaulable 
work in bring hope and information for these are 
two mighty tools to a brighter future.

Name: MaryAnn Straus E-mail: macstraus@juno.com
City: Katy Country: USA
Homepage: Date: 08-Apr-2004 20:08:46
Message:
I am 60 years old and have just been diagnosed 
with TS and have benn put on Xenazine from the 
UK.
It was explaned to me by Dr. Jankovic of Baylor 
College of Medicine that the  medication is not 
available in the US yet.  It is called an 
investigational drug (because not approved by 
the USDA yet).  It is my understanding it is 
only available thru Baylor.  Has anybody 
experience with this drug?
April 8, 2004

Name: hedda gaza E-mail: heddagaza@sbcglobal.net
City: san diego Country: usa
Homepage: Date: 05-Apr-2004 23:39:03
Message:
Hello

My son Jordan was diagnosed with ts when he was 
11 years old.  He is now 21 years old and a fine 
young man.  He was diagnosed with ts, adhd and 
obsessive compulsive disorder.  Jordan is going 
to college and works part time as an assistant 
chef for a greek restaurant.  I am very proud of 
my son.  He has overcome many challenges and 
works hard every day.  I couldn't ask for a 
better son and I am extremely proud of him.  His 
ts is very mild now.  It does wax and wane and 
right now he is not on any medication.  He was 
on halperidol, paxil and ritilin.  If he feels 
the need to go back on the meds he will.  

I am very glad I found this website and hope 
others will never give up on themselves and 
those they know who are afflicted with this. 

Name: Catrina E-mail:
City: Connecticut Country: usa
Homepage: Date: 02-Apr-2004 15:58:37
Message:
Hello. My name is Catrina, and I am 14 years 
old. I have had tourettes syndrom since i was 8 
years old, and just recently started taking 
Haldol to help control the tics. I just want to 
thank everybody at this website for all your 
support for kids with ts. it has been a big 
help. Thank you!

Name: Kristy Olson E-mail: kolson@bransoncvb.com
City: Branson Country: US
Homepage: Date: 25-Mar-2004 11:46:04
Message:
My 9 year old son was recently diagnosed so I'm 
trying to get as much info as possible.  Thank 
you.

Name: Edna E-mail: pokiebear59@aol.com
City: Sugar Land Country: United States
Homepage: Date: 08-Mar-2004 23:59:45
Message:
Hi my son was diagnosed with Ts when he was 4 
years old. I have never heard about until he was 
diagnosed. He is 17 now and the older he gets 
the more ticks he has. The school where he goes 
is giving him a hard time. I got so tried of them 
saying he was a bad kid, that i went to the book 
store and bought this book called "Teaching the 
Tiger". The school principle read the book and 
thank me for the information. I do alot of 
research on Ts to see if any new information is 
wondering around. Just remember that you are not 
alone keep finding new information and learn 
more on Ts. I have learned alot these past 13 
years and still learning. One more thing join a 
Ts support group it helps to talk to other 
people who has Ts or has a family member with it.

Name: Grant Bratton E-mail: bgrantd@aol.com
City: Lake Orion, Mich. Country: USA
Homepage: www.happenstanceband.com Date: 29-Feb-2004 08:33:27
Message:
Please help us. We think my wife has a mild case 
of this. She is in DENIAL in a very bad way. 
Should she see a doctor? People used to pick on 
her at work etc. I am very worried about our 
son. Is this genetic? Is there a cure? Therapy 
or a new drug? I go nuts in restaurants & movies 
with her. She is louder than our baby. I am 
embarrased & upset. How do we get help?
God Bless you.
Grant

Name: Dzevat E-mail: prochask10@hotmail.com
City: Silvis Country: USA
Homepage: Date: 15-Feb-2004 21:41:07
Message:
I am a 26 year old male who has just discovered 
I have tics. I am currently in search for a 
specialist in Iowa City who can help me. My Dr. 
here put me on the med. Haloperidol 2MG and it 
makes me numb and dillusional, I can not sleep, 
work or function in public since I have been on 
this med. I can only hope it is right for me and 
keep taking it until I find a specialist. That 
is why I am visiting this site.The site made me 
feel better to read about cases like mine. Keep 
it up and Thank you! 

Name: Pam E-mail: pbfb@alltel.net
City: monroe Country: USA
Homepage: Date: 15-Feb-2004 20:43:12
Message:
I have just found out that my 9 year old son has 
ts,we found out many years ago that he had add 
and adhd.So now I am doing search to find out as 
much as I can about this problem ,tx for your 
help

Name: Sherri E-mail: karatemom@centurytel.net
City: Ofallon Country: USA
Homepage: Date: 14-Feb-2004 18:36:14
Message:
I just found my way to your website as part of 
my researching PANDAS and the recent movement 
disorder/tics/ocd behaviours that my son 
developed after another bout with strep.  I'm so 
glad, so thankful, that I found yours as one of 
the first, and not one of the other more 
pessimistic sites.  Thank you!  Those two little 
words seem so inadequate but it's all I have.  
I'm 45 years old with a 21 yo and an 8 yo.  I've 
tic'd all my life, that I can remember.  Was 
humiliated by my parents and family far more 
than by friends.  Never realized just how many 
TS symptoms, OCD and ADD symptoms I have until 
today.  We are going to a pyschologist 
tomorrow.  Don't know that he'll be able to deal 
with TS, at least in a positive way, but we were 
initially seeing him because of the 8yo's 
depression from the recent movement disorder and 
how it has isolated him.  Anyway...this 
knowledge puts a new spin on things.  We'll see 
how the psychologist approaches this.  I do see 
so many symptoms of TS with both my boys, 
myself, my siblings, nephews, and father.  
Husband has some TS symptoms, OCD and ADD 
symptoms and so does his siblings and mother.  
Also alcoholism runs rampant in our families and 
it was surprising to see the comment in FAQ's 
about how TS is related to a disorder in 
dopamine, just like the biochemical markers of 
alcoholism.  I think our families have probably 
been self-medicating all these years with the 
alcohol.  Hmmmm.  Interesting.

Again, thanks so much for your undying effort, 
compassion, and concern.  You've made the world 
a better place, with or without TS.

Name: T E-mail:
City: Country:
Homepage: Date: 12-Feb-2004 19:39:15
Message:
I have read quite a bit of information with 
regard to TS online, and this is the first site 
that left me with hope, that allowed me to 
understand that I do not have to find a cure 
for my daughter, and that I was in fact 
concentrating on her diagnosis.  I feel so much 
better!!!!  Thanks for providing a better path 
to follow. 

Name: mark kitching E-mail: whitewash35@hotmail.com
City: middlesbrough Country: united kingdom
Homepage: Date: 09-Feb-2004 12:42:30
Message:
today i was informed that my 10 year old son 
has TS , though very  mild, i was still stunned 
and worried, i came about your page , and after 
reading , find myself  a lot easier with it 
all, and a little less worried..thank you

Name: Kim E-mail: dwyer25@msn.com
City: Bismarck Country:
Homepage: Date: 19-Jan-2004 15:15:44
Message:
As a future educator, I am producing a 
microtheme for a college course regarding 
Tourette's Syndrome. I have searched your 
website and would like to use some of the 
valuable information contained here. I would 
like to have your permission to quote you, and I 
would also like permission to use your name in 
the author section of my references. I would 
appreciate your help! Sincerely, Kimberly Dwyer

Name: garylee wilson E-mail: garylee@curets.com
City: sacramento, ca Country: usa
Homepage: Date: 17-Jan-2004 02:21:23
Message:
i like your website but couldn't access the 
message board.

Name: MAXINE E-mail: max@theheatingshop.co.uk
City: merseyside Country: uk
Homepage: www.theheatingshop.co.uk Date: 08-Jan-2004 08:43:30
Message:
My son is 12 and has Tourettes. We are going 
through a difficult time right now with his 
behaviour rather than his 'ticcing'. He is a 
lovly, kind boy 99% of the time.. but his 
temper and stubborness gets the better of  him 
the rest of the time causing rows and 
unhappiness for us all. We have done lots of 
research about what he is or may be going 
through and it has started to help the way we 
handle certain situations. We have come to 
understand that he doesnt see most things 
as 'getting his own way' but more a case of 
something that he 'has to do' like a 
compulsion.. and untill he has completed 
whatever it is, then he is agitated and unruly. 
Finding this out has helped a lot. All we can 
do is support him, and show him lots of love as 
often he says he feels like his life is over 
and he wishes he wasnt here. Hopefully he will 
improve as he gets older and has a better 
understanding of TS.

max

Name: kelly E-mail: kellypacificcoast@yaho
City: So. Calif Country: usa
Homepage: Date: 05-Jan-2004 15:10:30
Message:
My son,age 8, has T.S. and I guess it bothers me 
more than him.I get such anxiety over "what if 
kids make fun of him " I keep it to myself and 
act as if the facial moves and sounds aren't 
even happening and just go on, but inside my 
heart just aches for him.I also worry about him 
getting in trouble at school for it even though 
I have told the teacher about it.(Im not sure 
she gets it )Some of his friends have asked him 
why he makes faces and he tells them nothing is 
happening or just ignores them. I dont know if 
that is the best thing to do or not. He knows 
its happening and i think he trys to supress it 
sometimes. I also need to know what to do with 
obsessive compulsive situations.I saw this sight 
and it looked like a positive place to be. I say 
so what to TS , but I feel diferently inside.I 
hope I will find some answers so I can be strong 
and supportive for my son.Thanks    

Name: Amelia Costello E-mail: ACostel1@rochester.rr.com
City: Rochester, New York Country: U.S.A.
Homepage: Date: 04-Jan-2004 19:53:48
Message:
Thank you for the most valuable information on 
Tics. My beautiful son Chad, 12 years old was 
diagnosed with Tics last summer. He also have 
autism. 

Name: rachael E-mail:
City: bedlington Country: england
Homepage: Date: 02-Jan-2004 18:43:44
Message:
hi im 13 and i have recently found out i have 
tourettes after about 2 years of tics after my 
granda died and i was so upset about my granda 
and i never told anyone until just recenty when 
my granndma sat down and talked to me and i got 
a lot better but i still get some tics when i am 
stressed.

Name: Chris Morgan E-mail: morganjp@erols.com
City: Ijamsville, MD Country: USA
Homepage: Date: 02-Jan-2004 11:56:44
Message:
Hi!  I have a 12 year old son who has developed a 
facial tic after having been on adderall for three years.  
Took him off drug but schoolwork has gotten worse, 
and tic is still present.  School kids have noticed.  How 
to help him?  Thanks

Name: DON RAWHOOF E-mail: CAPMANDOTWO@AOL.COM
City: ROCKFORD.IL Country: U.S.A.
Homepage: Date: 17-Dec-2003 00:25:20
Message:
IM 44 YRS.OF AGE MY TS STARTED WHEN I WAS 6 OR 
7,ABOUT 6 MONTHS AGO (JUNE 03)I WAS PUT ON 
ZOLOFT FOR MY DEPRESSION STEMMING FROM MY TS AND 
WAS SENT TO A NEUROLOGIST WHO PUT ME ON KLONOPIN 
WITH SERIOUS REPERCUSSIONS I SLIPPED INTO A DEEP 
DEPRESSION AND BECAME SUICIDAL.I QUIT TAKIKG THE 
KLONOPIN AND AM FINE ALTHOUGH ALL MY TICS ARE 
BACK.THE NEURO HAS SINCE LEFT AND THE NEW ONE 
WANTS ME TO START A LOWER DOSE OF KLONOPIN WHICH 
SCARES ME BECAUSE I KNOW AND THE NEURO KNOWS OF 
THE INTERACTION WITH THE ZOLOFT ,AND LIKE THE 
GUESTBOOK SAYS "NOW WHAT?"

Name: Laura E-mail: kittykate03@hotmail.com
City: Fallston Country: USA
Homepage: N/A Date: 16-Dec-2003 10:46:35
Message:
This site is awsome for projects! thanks for the 
information! 

Name: Jennifer Hamilton E-mail: iluvteechin@yahoo.com
City: Bartlesville, Ok Country: USA
Homepage: Date: 11-Dec-2003 14:47:13
Message:
I was glad to find this site...quite different 
from the medical-ease that was really quite 
overwhelming for us in this early stage. We are 
hoping to quickly move into the "so what?" 
stage. Thank you.

Name: Greg Goeglein E-mail: greg-sarah_goeglein@wycliffe.org
City: St. Cloud Country:
Homepage: Date: 10-Dec-2003 08:47:11
Message:
Regarding the Dr. Laura issue:
If I go to a family wedding with my child and 
he/she can even possibly be noisy, then I make 
sure and only go to the reception because I do 
not want to cause undo attention that takes 
away from the ceremony. 

If the bride came to me and said, "Please bring 
your child, I really want him/her there", then 
I might think about it.

Name: Sarah Bryant E-mail: londynh@yahoo.com
City: Spartanburg Country: USA
Homepage: Date: 09-Dec-2003 18:17:57
Message:
hi, athanks for putting this website here. It 
is very helpful for my project!

Name: Diane Desautels E-mail: timnesbitt@att.net
City: Naperville,Il Country: USA
Homepage: Date: 08-Dec-2003 09:59:49
Message:
I have a 23yr old son who has,Touretts, 
Obsesive Compulsive&Manick Depression. He's 
graduated from Bartlett Learning Center & is 
employed at the Naperville Library,which he 
enjoys emensly. What Mike doesn't have is a 
social group he can go to & make friends. Would 
anyone have an idea on where we can find 
something like that in our area? 
Mike's a happy guy as a rule but he does get 
depressed that he doesn't have friends.
I'll be looking forward to any info you could 
send our way.THANKS IN ADVANCE!

Name: sharon gibney E-mail: sharongibney@hotmail.com
City: bolton, ontario Country: canada
Homepage: Date: 03-Dec-2003 11:35:27
Message:
Hi, I'm a mother of three, and my middle boy who 
is 7 is my concern.  He has not been diagnosed 
with TS, but I am wondering if he could have 
it.  He does have a consistent habit of clearing 
his throat, stretching his nose and mouth, and 
lets out a scream every now and again.  My 
husband and I have not really thought about TS 
to each other, but recently I started to think 
about TS and is that what the problem is.  I 
just need to hear from other parents who's child 
is diagnosed with TS, and what made them seek 
help, or how were they diagnosed with TS.  I 
don't have a computer at home, right now I am in 
the library, and I can only come here every two 
days or so, so I will check in periodically.

Thanks 

Sharon.

Name: CHASE MONTGOMERY E-mail:
City: ST.PAUL MN. Country: USA
Homepage: Date: 30-Nov-2003 19:48:15
Message:
THANKS FOR THE INFO

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