Tourette Syndrome - Now What? Contact Me

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Last Update 10/08/07

Tourette Syndrome—Now What?
Raising awareness about the full spectrum of Tourette's disorder, with support and accurate information based on the latest research.
TSNW • TSNowWhat • TouretteNowWhat • Tourette Syndrome Now What?

Tourette's Syndrome Message Board and Blog!
(An online Tourette syndrome support group where you can meet adults, families and people with Tourette's Syndrome, keep up with the latest research, learn how to cope with Tourette's, and post your questions about Tourette's.)

Click on the links below for recent updates, latest research on Tourette's, and current Tourette's information

• Recent Tourette's Research Findings & Announcements

• Tourette Syndrome Books, Videos, DVDs

• Tourette's Hall of Fame/Shame

• Tourette FAQ and Quotable Quotes

• Tourette's stories in the Media and on the Internet

• Explaining Tourette's to children or talking about Tourette syndrome in the classroom

Click on the frog for the Tourette Syndrome Message Boards

It is not possible for me to respond to all the e-mail I get, and I am not a physician or a professional (just a mom).
On the Tourette Syndrome - Now What? message boards,
many people will respond to your questions about Tourette's syndrome.

Click to view or sign the Guest Book

Love and thanks to Kathryn, Chuck and Sandy
for guiding me as I learned about Tourette Syndrome,
and to all my ast friends who have accompanied me.

My heartfelt appreciation goes to Dr. James Leckman, Dr. Donald Cohen and Alice Carter, Ph.D. for putting it into writing so well and with so much respect for ALL persons with Tourette Syndrome.

  This site was chosen @Home Member Site of the Week for the week of July 28, 2000!    "This week's Member Site of the Week, will be a great help to anyone who is suffering from or knows someone who is suffering from Tourette's Syndrome. Tourette's Syndrome — Now What? is an informative and well designed Web site created to provide information and resources to people who have been diagnosed with Tourette's. Even if you don't have a personal connection you can learn more about the disease and some of the common symptoms and misconceptions. Check it out."

I wish they hadn't used the words "disease" and "suffering," but nonetheless, I'm honored!

Disclaimer - Just a Mom !

I am not a medical person and am not qualified to give medical advice. Please discuss your treatment with your personal physician.

My e-mail is tsnowwhat on aol dot com; it is not possible for me to respond personally to all the e-mail I receive.

(Just a note: this website was designed for newcomers to Tourette's syndrome, to be read through in page order.
You can browse the pages in the order you desire, but if you're new to Tourette syndrome,
you may get a better overview by reading through the pages in order, by clicking on the Next Page links throughout.)

Strengths and advantages associated with Tourette's syndrome
Medical literature supports the common lore that children with Tourette syndrome have uncommon gifts.

Growing up with Tourette's Syndrome: Information for Kids
A new website about Tourette syndrome, with information targeted to ages 5–8, ages 9–13, and a section for parents.

HBO Documentary on Tourette's Syndrome
I Have Tourette's but Tourette's Doesn't Have Me
Video clips of Tourette's syndrome HBO Documentary

First Five Things to Do After Your Child Is Diagnosed with Tourette Syndrome
I may not agree with all of them, but # 1 is interesting.

Tourette Syndrome Research Article Summary

Controversy, myth, and inaccurate information about Tourette syndrome
Dr. Phil on Tourette's syndrome and Asperger's syndrome: "Extreme Disorders" and brain imaging
Dr. Laura Schlessinger on Tourette's
David Comings, M.D. - Hope Press - The Gene Bomb
Inaccurate definition of Tourette's Syndrome by Joseph Jankovic, M.D. in the New England Journal of Medicine
Deep Brain Stimulation, Tourette's Syndrome, and "Miracle Workers"

Disclaimer - Just a Mom !
I am not a medical person and am not qualified to give medical advice.
Please discuss your treatment with your personal physician.
PLEASE NOTE: I am NOT affiliated with another Tourette's website which uses the tourettenowwhat name!
(Imitation is the sincerest form of flattery? Or another webmaster trick to derive traffic from my name?)

A word about spelling
The official name of the condition, according to the DSM-IV-TR, 307.23, is Tourette's disorder.
Tourette's is also referred to as TS, Tourette Syndrome, Tourette's syndrome, GTS, and Gilles de la Tourette's Syndrome.
Common misspellings are tourettes syndrome, tourretts, tourrettes, touretts, terrets, terets, turettes, turetts, turets, turetes and turrets syndrom.
Tourette's disease is a common misnomer (it's not a disease).
Tick is a common misspelling: ticks are nasty critters that suck blood from dogs and people. People with Tourette's disorder have tics.

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