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Last Update 10/08/07

Tourette Syndrome—Now What? 
Raising awareness about the full spectrum of Tourette's disorder, with support and accurate information based on the latest research.
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Tourette's Syndrome Message Board and Blog!
(An online Tourette syndrome support group where you can meet adults, families and people with Tourette's Syndrome, keep up with the latest research, learn how to cope with Tourette's, and post your questions about Tourette's.)

Click on the links below for recent updates, latest research on Tourette's, and current Tourette's information
  Recent Tourette's Research Findings & Announcements
  Tourette Syndrome Books, Videos, DVDs
  Tourette's Hall of Fame/Shame
  Tourette FAQ and Quotable Quotes
  Tourette's stories in the Media and on the Internet
  Explaining Tourette's to children or talking about Tourette syndrome in the classroom

     

      MORE TOURETTE'S SYNDROME LINKS

 

USEFUL TOURETTE'S SYNDROME RESOURCES

Yale University School of Medicine, Child Study Center, TS/OCD Clinic

The Obsessive-Compulsive Foundation

Members of the TSA National Board of Directors, Medical Advisory Board, Professional Advisory Board, and Scientific Advisory Board

Tourette Syndrome Summer Camp

HBO Documentary on Tourette's Syndrome

Tourette Syndrome Information

Tourette's Syndrome Dictionary of Links

Lyme disease and Tourette's syndrome

Complete Report on Survey 2000 the unofficial, online survey to solicit input about how well  the  Tourette Syndrome Association  is meeting the needs of those involved with Tourette Syndrome.  

CONTROVERSY AND MISINFORMATION ABOUT TOURETTE'S SYNDROME

Misleading Tourette syndrome definition published in NEJM by Jankovic

Dr. Phil on Tourette's syndrome and Asperger's syndrome:  "Extreme Disorders"

Dr. Laura Schlessinger on Tourette's  

Inversine, Mecamylamine, and Targacept - information about Tourette's and nicotine

David Comings, M.D. - information about Hope Press, The Gene Bomb, and Comings Tourette syndrome research

Tourette Syndrome in the Media"An Angel in My Tree," which aired on December 17th, 2000 was an unfavorable media treatment of Tourette Syndrome.   The recent Ally McBeal segment is also discussed, as well as the TSA's role in these productions.

INFORMATION ABOUT AD/HD

Tourette's, tics and stimulants - journal research about the use of stimulants (e.g.; Ritalin, Adderall, Concerta) in the presence of tics.

The 4-Year Course of Tic Disorders in Boys With Attention-Deficit/Hyperactivity Disorder  

AD/HD A Major Factor In Tic Disorder :  A summary of a journal article which points out that ADHD accounts for much of the impairment seen in clinical samples of persons with tic disorders.

Social and Emotional Functioning in children with ADHD and TS:   A summary of a journal article indicating that "family functioning was associated with social and emotional adjustment" and that " much of the social and behavioral dysfunction in children with Tourette's syndrome is ADHD-specific" and " children with Tourette Syndrome alone have a very different social-emotional profile than do those with TS plus ADHD."

If your child has disruptive behaviors, rage, temper tantrums, anger outbursts, or conduct disorders, these sites may be helpful in understanding the differences between ADHD and Bipolar Disorder.

Diagnosing Bipolar vs. ADHD
When ADHD is not ADHD
Child and Adolescent Bipolar Foundation
"Rage"

Central Auditory Processing Disorder (CAPD)

Management of auditory processing disorders

http://pages.cthome.net/cbristol/capd-idx.html
http://www.ldonline.org/ld_indepth/process_deficit/living_working.html
http://www.d93.k12.id.us/~sservice/Coping_With_CAPD.html
http://www.d93.k12.id.us/~sservice/Auditory_Processing.html
http://www.d93.k12.id.us/~sservice/CAPDmangment.html


Reciprocal Links - these are sites that link back to this site.  No endorsement necessarily intended or implied.

http://en.wikipedia.org/wiki/Laura_Schlessinger
http://encyclopedia.thefreedictionary.com/Laura%20Schlessinger
http://health.xq23.com/conditions/part_2/Tourette_Syndrome.html
http://hem.bredband.net/b115842/lankar_tourettes.htm
http://hometown.aol.com/Jeri10/Tourette.html
http://human-nature.com/odmh/tourette.html
http://medications.com/go/dir/58577
https://members.tripod.com/all-about-tourettes/
https://members.tripod.com/~pex/tourette.html
http://mysonsean.homestead.com/
http://ourworld.cs.com/touretteemail/index.htm?f=fs
http://specialchildren.about.com/od/tourettesyndrome/qt/ffts.htm
http://texaseducator.com/health/mentalhealth/1tourette.html
http://twitch.sitesled.com/index.html
http://tourette-syndrome-now-what.blogspot.com/
http://uk.geocities.com/booksniffersanon/links.html
http://user.tninet.se/~fxg297r/lankar_tourettes.htm
http://users.joplin.com/~dkvander/asperger.html
http://www.accessibility.com.au/kids/condition/tourretts.htm
http://www.addresource.com/catsearch.adhd?category=18&name=Tourette+Syndrome
http://www.answers.com/topic/laura-schlessinger
http://www.brainyencyclopedia.com/encyclopedia/l/la/laura_schlessinger.html
http://www.channel4.com/health/microsites/0-9/4health/mind/wwr_tourettes.html
http://www.ctserc.org/library/bibfiles/tourette.pdf
http://www.cwgsy.net/community/tosy/prog.htm
http://www.disabilitymalaysia.com/index2.php?type=list&table=website&detail=Tourette+Syndrome
http://www.dollandassociates.com/mental_health.html
http://www.dooyoo.co.uk/discussion/general-15/1002270/
http://www.focusas.com/Tourette'sSyndrome.html
http://www.gaston.k12.nc.us/departments/dec/Disability%20Links.htm
http://www.geocities.com/energizer_bunny_texas/Tourettes.html?200611
http://www.geocities.com/fatdad36_20/TourettesLinks.html
http://www.healthcyclopedia.com/neurological-disorders/tourette-syndrome.html
http://www.health-nexus.com/tourette_syndrome.htm
http://www.kristinachew.com/autism/2006/01/the_extreme_and.html
http://www.iseekhealth.com/conditions-and-diseases/tourette-syndrome-3135.htm
http://www.kub.it/dir/97296/
http://www.mic.ki.se/Diseases/C10.228.html
http://www.neurologyhelpcenter.org/newmedical_links.htm
http://www.patsainc.org/Related_Links/Default.asp?TOCID=2036017861
http://www.psyplexus.com/pdnd/index.php?c=Tourette_Syndrome
http://www.soulexpressradio.com/RWM.htm
http://www.tapartnership.org/advisors/mental_health/faq/Feb05.asp
http://www.totallycamping.com/illinoiscamping/
http://www.tourette.bravehost.com/
http://www.touretteplus.nl/kk_1300000.html
http://www.tourettes.me.uk/links.htm
http://tourettesnz.com/links.html
http://www.tourettesyndrome.net/links_tourette.htm

http://www.tsa.org.uk/
http://www.tsact.org/online.htm
http://www.tsact.org/images-downloads/CT%20TSA%20NL%20summer%202002.pdf
http://www.warm2kids.com/guest/teen/26/46/506/resources.htm
http://www3.telus.net/public/breno620/tsedmontonchapter/links.htm
http://www-personal.umich.edu/~pfa/mlaguide/urlsubj/mh23.html
http://zenpretzeltrick.blogspot.com/2004/12/tin-gods-with-audience-celebrity-tin.html

Back to TS Links

 

(Just a note:  this website was designed for newcomers to Tourette's syndrome, to be read through in page order. 
You can browse the pages in the order you desire, but if you're new to Tourette syndrome,
you may get a better overview by reading through the pages in order, by clicking on the Next Page links throughout.)

  Strengths and advantages associated with Tourette's syndrome
Medical literature supports the common lore that children with Tourette syndrome have uncommon gifts.

Growing up with Tourette's Syndrome:  Information for Kids
A new website about Tourette syndrome, with information targeted to ages 5–8, ages 9–13, and a section for parents.

HBO Documentary on Tourette's Syndrome   
I Have Tourette's but Tourette's Doesn't Have Me
Video clips of Tourette's syndrome HBO Documentary
   

First Five Things to Do After Your Child Is Diagnosed with Tourette Syndrome
I may not agree with all of them, but # 1 is interesting.

 Tourette Syndrome Research Article Summary

  Controversy, myth, and inaccurate information about Tourette syndrome
 Dr. Phil on Tourette's syndrome and Asperger's syndrome:  "Extreme Disorders" and brain imaging 
  Dr. Laura Schlessinger on Tourette's  
David Comings, M.D. - Hope Press - The Gene Bomb

Inaccurate definition of Tourette's Syndrome by Joseph Jankovic, M.D. in the New England Journal of Medicine
Deep Brain Stimulation, Tourette's Syndrome, and "Miracle Workers"
    
Disclaimer - Just a Mom !
I am not a medical person and am not qualified to give medical advice.
Please discuss your treatment with your personal physician.
PLEASE NOTE:  I am NOT affiliated with another Tourette's website which uses the tourettenowwhat name!
(Imitation is the sincerest form of flattery?  Or another webmaster trick to derive traffic from my name?)


A word about spelling

The official name of the condition, according to the DSM-IV-TR, 307.23, is Tourette's disorder. 
Tourette's is also referred to as TS, Tourette Syndrome, Tourette's syndrome, GTS, and Gilles de la Tourette's Syndrome.
Common misspellings are tourettes syndrome, tourretts, tourrettes, touretts, terrets, terets, turettes, turetts, turets, turetes and turrets syndrom.
Tourette's disease is a common misnomer (it's not a disease).
Tick is a common misspelling:  ticks are nasty critters that suck blood from dogs and people.  People with Tourette's disorder have tics.

Tourette's Syndrome - Now What?   |    About Us    |    Tourette Syndrome Stories    |  More Tourette's Syndrome Stories
Tourette's Syndrome FAQ   |   About Tourette's syndrome    |  Tourette's Syndrome - So What?
Tourette's Syndrome Doctors    |   Tourette's Syndrome Books    |  Tourette's Syndrome Links   |   ALL ABOUT TICS

Tourette's Syndrome Research articles   |   Other Tourette Syndrome Links    |   International Links - Síndrome de Tourette en español – castellano
Dr. Laura on Tourette's Syndrome    |   David E. Comings, Tourette's and Hope Press     |    NEJM - Jankovic article on Tourette's Syndrome

 Blog about Tourette Syndrome - Tourette's Disorder    |    Tourette's Disorder Information   |  All About Tourettes syndrome  |  Tourette Syndrome Fact Sheet
Upcoming Tourette's Events  |   Tourette’s Message Board and Blog    |   Tourette’s Syndrome NW - Guest Books   |  Contact Me  


If you're looking for the Tourettes Syndrome Guy video or Tourettes Guy video clips:
they're not here, but please stay and browse for some accurate information about Tourette's syndrome.


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No part of this publication may be copied, re-printed, or used in any form without my prior consent.